Grace had her check-up with the Neurologist yesterday. We were excited for him to see the progress she has made since her last visit in March. He had to look at his chart to see which side was her "weaker" side. He couldn't tell!!! Amazing!!
He also said that if he had predicted this kind of progress 10 months ago he would have been stretching it!! We couldn't have been happier or more proud of Grace than we are today! She has overcome so much and we love her so much.
I recently came across a short article that really touched me and I'm sure will be a comfort for many years to come. I feel honored and excited to be both Grace and Reese's mother. I have no idea what the future holds but I can't worry about tomorrow or I might miss out on all the wonderful things today!
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome To Holland".
"Holland?!?" you say, "What do you mean "Holland"??? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy"
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around…and you begin to notice that Holland has windmills...Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes that's where I was supposed to go. That's what I had planned".
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very significant loss.
But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things...about Holland.
5 comments:
I love that! What a beautiful way to explain...
Love, love, love that article! What a blessing you are to those beautiful little girls. I think we need some more pictures!
I am so proud of Gracie and so happy for you guys that she is doing so well! Wonderful news!! I also love that article. Very touching and very true.
Happy Monday Tiff. I wanted to send you a quick note about "Daddy Blogging Wednesdays". It starts this Friday and I think Matt should join me. What do you think?
Check out our blog for more info.
Thanks!
yay gracie!!! we always knew she was going to excell!!! we are happy to hear the good news. also, glad you found that article tiffany... definitely something to hold on to!
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